What a Fall!

This last couple months has been a flurry and a whirlwind of activity and trips and procedures and I am exhausted. God works in amazing ways, and sometimes not in ways we expect. The last entry I posted was before we headed to Boston. Not surprising, as that is about when I feel like I was last in control of my weight loss, and this is primarily my weight loss/maintenance blog.

Stress is a huge factor in whether I am "out of control" and not really caring about my weight, and when I am. This last 3 months have been little BUT stress.

The Boston trip was good...saw some old friends, had a visit with the Doctors at Boston Children's Hospital. They are of the opinion that Julian definately needs a transplant, but that if we can forestall Dialysis then that would be fine. So what do we do? Come home and put him on Dialysis! Why? Because his creatinine inched up into the 5's, and his PTH remained super-high in the 1200's-1400's.

But, Julian hasn't been the same since we did that. His demeanor changed. He is more timid, less able to be without his Momma. His appetite has decreased, and we have been unable to successfully do dialysis anyway because his catheter continues to migrate up into his upper abdomen. On Monday Dr. Ford spoke of a "surgical solution" and Dave and I decided that if his labs were good and the doctors needed to do surgery to correct the catheter placement, that we would simply take it out. So, we are taking it out as soon as the surgery can be scheduled. And we are relieved.

I was reading on Sunday, my "normal" reading which has been far from routine this fall, brought me to Genesis, and the account of Noah and the flood. It rained for 40 days. I counted back what 40 days would look like from the date he got the catheter surgically placed, and realized that 40 days was over on the next day, Monday. I prayed the Lord to have it stop raining. I believe He answered me with Julian's good labs and the fact that we couldn't continue Dialysis training. I believe God will sustain Julian's kidneys until he gets his transplant. I believe it. He has so far, and Julian is still stable. His creatinine was in the low 4's, and it was wonderful.

Lots is happening in our lives. We have decided to blow this popsicle stand and get back to Phoenix. Family, friends, everyone who is important to us, most of them live in Arizona. We can be out of debt entirely and live in a house we can actually afford. I'm thrilled. I can't wait. Please, Lord, sell this house!

I am so excited to get to Phoenix, and spend some good time with my Mom. The Hospice Doctor does not think she will last another 3 months, so hopefully we will be moved out there before she passes, and she can see us and Julian again.

Lord, let it be so.

I booked a trip to Disneyland in May, for Dave's birthday. Of course we will be staying at Disney's Grand Californian, and I requested room 5417. We love that room.

Well, I'm off to put away the dishes and straighten up my house. No more living in a sty.